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A young boy faces a daily battle with a rare condition which causes him to severely injure himself. Davey Wicklund, 11, from Renton, Washington, has a rare inherited disorder that affects his muscle control called Lesch Nyhan syndrome. Davey’s mother, Jaren explained: "Lesch Nyhan syndrome is basically cerebral palsy with self injury. Davey has got the extreme. He cannot stand, walk, he cannot pull his head up for long time, independently. He has got the muscle strength, but not the ability to control.” The parents have to take special measures daily to ensure that Davey doesn’t hurt himself; including arm braces, kangaroo-type pouches to tuck his legs in and a rubber mouth contraception to stop him biting his lip.

Video Credits:
Videographer / director: Andres Aponte
Producer: Camile Rocha-Keys, Ruby Coote
Editor: Josh Halil

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