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A RARE medical condition has left a young woman in effect ‘turning to stone’. At just 23-years-old Carli Henrotay’s mobility is already severely restricted: she can’t raise her arms above her head and uses a wheelchair to get around; while her jaw only opens a few millimetres. Carli has Fibrodysplasia Ossificans Progressiva (FOP), which causes muscle and connective tissue to slowly change into bone. FOP has a life expectancy of 40 and there are currently only 800 people worldwide known to have the condition. But despite suffering from the condition, Carli lives as positive a life as possible and recently moved in with her boyfriend of six years, Billy.

To find out more, click here:
https://www.ifopa.org/
  / ifopa  
  / cure_fop  

Video Credits:
Videographer / director: Gerrit Messersmith, Brian Gadt
Producer: Nathalie Bonney, James Thorne
Editor: James Thorne

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